Resources of Special Interest...
Lymedisease.org (formerly CALDA)
www.lymedisease.org
Formerly the California Lyme Disease Association (CALDA), lymedisease.org now extends its reach nation-wide with a large and valuable website full of information, resources, and an excellent blog by Lorraine Johnson, J.D. MBA, an internationally recognized leader in the fight for Lyme victims.
An extensive library of research documents, educational materials, treatment advice, insurance advice, and other information is available under the "Resources" tab of their website.
http://www.lymedisease.org/resources/insurance.html
www.lymedisease.org
Formerly the California Lyme Disease Association (CALDA), lymedisease.org now extends its reach nation-wide with a large and valuable website full of information, resources, and an excellent blog by Lorraine Johnson, J.D. MBA, an internationally recognized leader in the fight for Lyme victims.
An extensive library of research documents, educational materials, treatment advice, insurance advice, and other information is available under the "Resources" tab of their website.
http://www.lymedisease.org/resources/insurance.html
Listen to "Diagnosing and Treating Lyme Disease" on the Diane Rehm Show (click link)
http://thedianerehmshow.org/audio-player?nid=15684
In this informative conversation, Dr. Paul Auwater of Johns Hopkins states the IDSA's position on Lyme disease, and then Dr. Brian Fallon, Director of the Columbia Lyme and Tick-Borne Diseases Research Center, Dr. Stephen W. Barthold, of the University of California, Davis, and Dr. Samuel Shor of George Washington University explain their research and why they disagree with the IDSA's position.
In this informative conversation, Dr. Paul Auwater of Johns Hopkins states the IDSA's position on Lyme disease, and then Dr. Brian Fallon, Director of the Columbia Lyme and Tick-Borne Diseases Research Center, Dr. Stephen W. Barthold, of the University of California, Davis, and Dr. Samuel Shor of George Washington University explain their research and why they disagree with the IDSA's position.
UnderOurSkin
UnderOurSkin, a movie by Andy Abrahms Wilson
This terrifying real-life drama uncovers the controversy of Lyme disease, revealing a natural world out of balance and a human nature all too willing to put profits before patients. This movie explains the science and the politics that have merged to create an unnecessary public health debacle.
Available for streaming through Netflix & Hulu. Amazon offers free streaming of this movie to its Prime members, and offers it for rent for a nominal fee for non-prime members. DVD also available for purchase. Also available through most public libraries.
This terrifying real-life drama uncovers the controversy of Lyme disease, revealing a natural world out of balance and a human nature all too willing to put profits before patients. This movie explains the science and the politics that have merged to create an unnecessary public health debacle.
Available for streaming through Netflix & Hulu. Amazon offers free streaming of this movie to its Prime members, and offers it for rent for a nominal fee for non-prime members. DVD also available for purchase. Also available through most public libraries.
Advocacy Organizations, Laboratories, Resource Materials
International Lyme and Associated Diseases Society (ILADS)
www.ilads.org
The website contains information that medical professionals can use to study and treat tick borne diseases.
The TREATMENT GUIDELINES and several brochures specific to diagnosis can be found on this site.
www.ilads.org
The website contains information that medical professionals can use to study and treat tick borne diseases.
The TREATMENT GUIDELINES and several brochures specific to diagnosis can be found on this site.
Lymediseaseassociation.org
http://www.lymediseaseassociation.org/
International Lyme and Associated Diseases Society provides detailed information about Lyme disease and the efforts to advance understanding, treatment, and advocacy.
http://www.ilads.org/about_ILADS/about_us.html
http://www.lymediseaseassociation.org/
International Lyme and Associated Diseases Society provides detailed information about Lyme disease and the efforts to advance understanding, treatment, and advocacy.
http://www.ilads.org/about_ILADS/about_us.html
Tick Borne Disease Alliance
www.tbdalliance.org
Formerly Turn the Corner Foundation, the Tick Borne Disease Alliance is dedicated to raising awareness, promoting advocacy and supporting initiatives to find a cure for tick-borne diseases, including Lyme.
www.tbdalliance.org
Formerly Turn the Corner Foundation, the Tick Borne Disease Alliance is dedicated to raising awareness, promoting advocacy and supporting initiatives to find a cure for tick-borne diseases, including Lyme.
Empire State Lyme Disease Association
www.empirestatelymediseaseassociation.org
Provides information, for educational purposes only, on topics of Lyme and tick-borne diseases and we address other areas of concern to participants. Site includes details about regional NYS support groups.
www.empirestatelymediseaseassociation.org
Provides information, for educational purposes only, on topics of Lyme and tick-borne diseases and we address other areas of concern to participants. Site includes details about regional NYS support groups.
Laboratories Specializing in Lyme Disease
IGeneX,Inc.
http://igenex.com/Website/
Igenex will send individuals a packet you can take to your doctor asking him/her to draw blood and send it to Igenex for testing.
http://igenex.com/Website/
Igenex will send individuals a packet you can take to your doctor asking him/her to draw blood and send it to Igenex for testing.
Recommended Resource Materials - Books & DVDs
All resource materials can be purchased at Amazon.com
The Lyme Disease Solution by Kenneth B. Singleton, MD
The Lyme Disease Solution is a comprehensive guide to the diagnosis and treatment of Lyme disease and other tick borne infections. The author, Dr. Kenneth Singleton, is a board certified specialist in Internal Medicine who himself struggled with severe symptoms of Lyme disease for 8 years prior to being correctly diagnosed and treated. His book is full of medical wisdom and practical pearls of clinical information that every Lyme patient will find immensely useful. Though detailed, the book is easy to read and comprehend.
"Cure Unknown, by Pamela Weintraub, is a "must read"for anyone who wants to understand Lyme disease - the disease, the politics, the anger."
Cure Unknown, by Pamela Weintraub
In this nuanced picture of the intense controversy and crippling uncertainty surrounding Lyme disease, Pamela Weintraub sheds light on one of the angriest medical disputes raging today. The most comprehensive book ever written about the past, present and future of Lyme disease, Cure Unknown exposes the ticking clock of a raging epidemic and the vulnerability we all share.
In this nuanced picture of the intense controversy and crippling uncertainty surrounding Lyme disease, Pamela Weintraub sheds light on one of the angriest medical disputes raging today. The most comprehensive book ever written about the past, present and future of Lyme disease, Cure Unknown exposes the ticking clock of a raging epidemic and the vulnerability we all share.
Recipes for Repair by Gail Piazza
Laura Piazza, a graphic designer and photographer, struggled for years with what turned out to be Lyme disease and coinfections. Wanting to give her body its best shot at healing, she decided to give the diet a try. Lucky for her, her mom was uniquely qualified to give her a hand. Gail Piazza is a professional home economist and cook, with a long track record of developing recipes for high profile clients. Laura emailed her mom a list of foods she was supposed to eat, and her mom sent her back suggested recipes. That was the beginning of what eventually became this book, which the pair created in partnership with Dr. Singleton.
Laura Piazza, a graphic designer and photographer, struggled for years with what turned out to be Lyme disease and coinfections. Wanting to give her body its best shot at healing, she decided to give the diet a try. Lucky for her, her mom was uniquely qualified to give her a hand. Gail Piazza is a professional home economist and cook, with a long track record of developing recipes for high profile clients. Laura emailed her mom a list of foods she was supposed to eat, and her mom sent her back suggested recipes. That was the beginning of what eventually became this book, which the pair created in partnership with Dr. Singleton.
Healing Lyme, by Harrod Buhner
Despite Centers for Disease Control estimates that only 20,000 new Lyme disease infections occur each year, the true figure, as Harvard medical school researchers have found, nearly approaches 200,000. Symptoms run from mild lethargy to severe arthritis to incapacitating mental dysfunction. And despite medical pronouncements to the contrary, extensive research has found that tests for the disease are not very reliable and antibiotics are only partially effective; up to 35 percent of those infected will not respond to treatment or will relapse. The spirochetes that cause Lyme are stealth pathogens--they can hide within cells or alter their form so that antibiotics cannot affect them. Lyme disease is, in fact, a potent, emerging epidemic disease for which technological medicine is only partially effective.
Healing Lyme examines the leading, scientific research on Lyme infection, its tests and treatments, and outlines the most potent herbal medicines and supplements that offer help--either alone or in combination with antibiotics--for preventing and healing the disease. It is the essential guide to Lyme infection and its treatment.
Despite Centers for Disease Control estimates that only 20,000 new Lyme disease infections occur each year, the true figure, as Harvard medical school researchers have found, nearly approaches 200,000. Symptoms run from mild lethargy to severe arthritis to incapacitating mental dysfunction. And despite medical pronouncements to the contrary, extensive research has found that tests for the disease are not very reliable and antibiotics are only partially effective; up to 35 percent of those infected will not respond to treatment or will relapse. The spirochetes that cause Lyme are stealth pathogens--they can hide within cells or alter their form so that antibiotics cannot affect them. Lyme disease is, in fact, a potent, emerging epidemic disease for which technological medicine is only partially effective.
Healing Lyme examines the leading, scientific research on Lyme infection, its tests and treatments, and outlines the most potent herbal medicines and supplements that offer help--either alone or in combination with antibiotics--for preventing and healing the disease. It is the essential guide to Lyme infection and its treatment.
Legislators (New York partial list)
(They WANT to hear from YOU! They NEED to hear from YOU!)
Senator Charles Schumer
Leo W. O’Brien Federal Office Building
1 Clinton Square, Room 420
Albany, N.Y. 12207
Phone: (518) 431-4070
Fax: (518) 431-4076
Washington D.C. Office
313 Hart Bldg. Washington, DC 20510
Phone: (202) 224-6542
Fax: (202) 228-3027
Email: albintern1@schumer.senate.gov
Senator Kirsten Gillibrand
Leo W. O’Brien Federal Office Building
1 Clinton Square, Room 821
Albany, N.Y. 12207
Phone: (518) 431-0120
Fax: (518) 431-0128
Washington D.C. Office
478 Russell St. Washington DC 20510
Phone: (212) 688-6262
Fax: (212) 688-7444
Online contact: http://gillibrand.senate.gov/contact/
Congressman Chris Gibson
20th District
Saratoga District Office
513 Broadway
Saratoga Springs, N.Y. 12866
Phone 518-306-5450
Fax: 518-306-5446
Washington, D.C. Office
502 Cannon HOB
Washington, DC 20515
Phone: 202-225-5614
Fax: 202-225-1168
https://chrisgibsonforms.house.gov/Forms/WriteYourRep/default.aspx
New York State Senate
Elizabeth (Betty) Little
45th Senate District
Albany Office
506 Legislative Office Building
Albany, NY 12247
Phone: (518) 455-2811
District Office
5 Warren Street
Suite 3
Glens Falls, NY 12801
Phone: (518) 743-0968
Plattsburgh Office
137 Margaret Street, Suite 100
Plattsburgh, New York 12901
Phone: (518) 561-2430
Email : little@senate.state.ny.us
Senator Hugh Farley
44th Senate District
Legislative Office Building -Room 706
Albany, NY 12247
Phone: 518-455-2181
Fax: 518-455-2271
Amsterdam District Office
2430 Riverfront Center
Amsterdam, NY 12010
Phone: 518-843-2188
Fax: 518-843-8363
Johnstown District Office
City Hall, 33-41 East Main Street
Johnstown, NY 12095
Phone: (518) 762-3733
Fax: (518) 762-3721
Email address: farley@senate.state.ny.us
New York State Assembly
James N. Tedisco
110th Assembly District
Legislative Office Building, Room 933
Albany, NY 12248
Phone: 518-455-3751
Fax: 518-455-3750
Email address: tedisj@assemmmbly.state.ny.us
Tony Jordan
112th District
Albany Office
Legislative Office Building Room 725
Albany, NY 12248
518-455-5404
District Office
383 Broadway, Room 202
Fort Edward, NY 12828
518-747-7098
Theresa Sayward
113th District
Albany Office
LOB 940
Albany, NY 12248
518-455-5565
District Office
7559 Court St. Rm 203
PO Box 217
Elizabethtown, NY 12932
518-873-3803
District Office
140 Glen St.
Glens F alls, NY 12801
518-792-4546
Governor Andrew Cuomo
Executive Chamber, State Capital
Albany, NY 12224
Phone: 518-474-8390
Fax: 518-474-1513
OR...
NYS State Senate
Albany, NY 12247
518.455.2800
Who is My Senate Representative (click here)
NYS State Assembly
Albany, NY 12248
518.455.4100
Email Assembly
Who is My Assembly Representative? (click here)
Leo W. O’Brien Federal Office Building
1 Clinton Square, Room 420
Albany, N.Y. 12207
Phone: (518) 431-4070
Fax: (518) 431-4076
Washington D.C. Office
313 Hart Bldg. Washington, DC 20510
Phone: (202) 224-6542
Fax: (202) 228-3027
Email: albintern1@schumer.senate.gov
Senator Kirsten Gillibrand
Leo W. O’Brien Federal Office Building
1 Clinton Square, Room 821
Albany, N.Y. 12207
Phone: (518) 431-0120
Fax: (518) 431-0128
Washington D.C. Office
478 Russell St. Washington DC 20510
Phone: (212) 688-6262
Fax: (212) 688-7444
Online contact: http://gillibrand.senate.gov/contact/
Congressman Chris Gibson
20th District
Saratoga District Office
513 Broadway
Saratoga Springs, N.Y. 12866
Phone 518-306-5450
Fax: 518-306-5446
Washington, D.C. Office
502 Cannon HOB
Washington, DC 20515
Phone: 202-225-5614
Fax: 202-225-1168
https://chrisgibsonforms.house.gov/Forms/WriteYourRep/default.aspx
New York State Senate
Elizabeth (Betty) Little
45th Senate District
Albany Office
506 Legislative Office Building
Albany, NY 12247
Phone: (518) 455-2811
District Office
5 Warren Street
Suite 3
Glens Falls, NY 12801
Phone: (518) 743-0968
Plattsburgh Office
137 Margaret Street, Suite 100
Plattsburgh, New York 12901
Phone: (518) 561-2430
Email : little@senate.state.ny.us
Senator Hugh Farley
44th Senate District
Legislative Office Building -Room 706
Albany, NY 12247
Phone: 518-455-2181
Fax: 518-455-2271
Amsterdam District Office
2430 Riverfront Center
Amsterdam, NY 12010
Phone: 518-843-2188
Fax: 518-843-8363
Johnstown District Office
City Hall, 33-41 East Main Street
Johnstown, NY 12095
Phone: (518) 762-3733
Fax: (518) 762-3721
Email address: farley@senate.state.ny.us
New York State Assembly
James N. Tedisco
110th Assembly District
Legislative Office Building, Room 933
Albany, NY 12248
Phone: 518-455-3751
Fax: 518-455-3750
Email address: tedisj@assemmmbly.state.ny.us
Tony Jordan
112th District
Albany Office
Legislative Office Building Room 725
Albany, NY 12248
518-455-5404
District Office
383 Broadway, Room 202
Fort Edward, NY 12828
518-747-7098
Theresa Sayward
113th District
Albany Office
LOB 940
Albany, NY 12248
518-455-5565
District Office
7559 Court St. Rm 203
PO Box 217
Elizabethtown, NY 12932
518-873-3803
District Office
140 Glen St.
Glens F alls, NY 12801
518-792-4546
Governor Andrew Cuomo
Executive Chamber, State Capital
Albany, NY 12224
Phone: 518-474-8390
Fax: 518-474-1513
OR...
NYS State Senate
Albany, NY 12247
518.455.2800
Who is My Senate Representative (click here)
NYS State Assembly
Albany, NY 12248
518.455.4100
Email Assembly
Who is My Assembly Representative? (click here)